May 20th
You touch the boy’s face to try to get his attention. He presses his temple into your palm and he looks up and he flashes a smile. This is the closest thing to a hello that he’s given you since you arrived in the TB ward fifteen minutes ago. Your teenage daughters laugh and say his name. He doesn’t look over your shoulder at them. He’s almost looking at you, almost looking at death, sitting patiently in a corner of the long rectangular room.
His smile is as fragile as a first poem and you’re afraid it might disappear. He’s still very far away, his eyes focusing and blurring. The surface of a lake that calms down for a moment, then shimmers and stirs with the wind. So you say his name over and over. And you caress his face and tickle his ears and tell him to eat the food that’s been cradled in his fingers for over ten minutes. He’s not eating these days and he’s not talking. You’ve been away for two weeks and in that time he’s grown imaginably thin.
In high school a student teacher once told you not to compare anything with the victims of the holocaust, the skeletal black and white bodies in history books. It was such a singularly horrific event that the people who suffered and died cannot be paraded out in the present for a mere simile or metaphor. All these years later you still feel the righteous heat in the teacher’s sentiment, and you feel you ought to find another, more politically correct comparison. But there are none.
You met Opoka Joseph about a month ago. Some missionaries from across town asked you to go and see him at the hospital, and you said you would. You ran into the two Americans on the dusty highway that hollers through town. It was Mandela Day, and the namesake of this particular 24 hour period was walking beside you with a camera strapped around his neck. The day had nothing do to with the former South African president. It was all about Mandela Joseph, the Houdini of Cornerstone, always disappearing and making you hold your breath for days (or weeks). He was newly arrived after a long absence from home, and you wanted to express to him how much you loved him so you were taking him out to lunch at one of Nimule’s finer dining establishments. You told the missionaries that it would be easy to remember the name of the sick boy in the hospital, because your kid – this cameraman here with the big grin – happens to be graced with the same name.
You’ve noticed these repetitions in your life before and they’ve always meant something, or you believed they must mean something but you weren’t able to put the significances into words…
A week passed and you caught wind of the missionaries departure for the States. Now that you had no one to impress with your good deeds, you finally made the time to visit the boy. He was in a ward full of adults, white bandages across his birdlike chest and smaller bindings taped to his lower abdomen. His eyes stared through you like twin portraits of lost wolves. His mouth was slightly open and you imagined all the light and color of the world diminished into the act of breathing, the lungs straining against a wounded chest. What did it feel like to be him?
You met his caretaker, Moses, who isn’t related to the boy, but lives near the boy’s sister. Moses knew how the family of the wife’s husband feared the boy, his abscesses, his constant coughing – how they were certain Joseph would eventually infect his sister’s children. And so he took it upon himself to bring the boy to the hospital and to stay with him night and day. The hospital in Nimule is so understaffed that the relatives and friends of patients will sometimes remain with their loved ones throughout an illness, feeding them and sometimes bandaging them, doing the work of the nurse, because the nurse has twenty other patients to attend to…
By the time you met Joseph he had already spent a month sleeping on a forest green mattress in the middle of a childless ward. He’d been staying with his sister, because both of his parents had passed away. The story you were given by the Moses and the sister was simple: Joseph’s mom and dad grew very thin and very sick, and then they died. The day after you met the boy, the pieces of his family’s history came into brutal, unchangeable alignment; Joseph’s bloodwork showed he was infected with HIV. Though his parents were never diagnosed with the virus, all the details of their deaths screamed its letters.
Jospeh was also found positive for tuberculosis. The test results were revealed to Moses and the sister on Friday, April 17th, and when you came that day to visit the boy you found his bed stripped of it’s sheets. Your imagination didn’t have the time to consider the worst possible scenario, because a sick old lady smiled at you from her place of convalescence (or eventual departure) and she pointed you in the direction of the TB ward. You found him there, still the only child in the room, still coughing, and still wonderfully and fearfully made. Sometimes you can see the beauty of God’s creation more strikingly in the weakness of a child’s body than in its strength and health. You are torn apart by the fact that no child should ever have to suffer such pain, you touch the gulf between what should be and what is, you see the immense value of life when that life is verging on death.
Somehow you managed to live in Africa for almost four years without coming face to face with a child living with HIV. And then Joseph presented himself, and you were delighted to have the opportunity to bring him food as the sun set each day. Your haphazard heart, divided by so many obligations and emotions at any given moment of any given day, felt at peace when you were with him in the evenings. You discovered his love for mangoes; he sucked on the things for several minutes even after all the edible parts appeared to be gone. You discovered his need for contact; he liked holding your hand for interminable spells and saying “how are you” every now and then. It was the only English he knew. One night he surprised you and greedily pulled your hand so that your palm rested on his face. You could feel his smile against your lifeline. Some of your girls, Jane and Janet, were there and they asked him in Acholi what he was trying to do. He didn’t answer, but just sighed and laughed a little. You knew this was dangerous. You knew you were falling in love.
Oftentimes you went to hang out with Joseph and found him drugged up and half asleep. On one of his pharmaceutically challenged days, you went to see him with the other Joseph, the magician with the unpredictable disappearing act. He volunteered himself and you were glad to take him along. At the hospital, in the two-tone ward (blue and grey), you laid your hands on the boy’s head and prayed for him as he drifted in and out of consciousness, and Mandela Joseph stood beside you, his hand on the boy’s arm, his mouth also issuing an amen when “amen time” arrived.
Then you left for a holiday of sorts, and asked Pastor Santos to keep sending the girls with pots of nutritional support to Joseph. You went to Adjumani in Northern Uganda to see a dear friend say goodbye to the place that she and her husband poured their common heart into for the past seven years. Then you traveled to Kampala to meet Pastor Juma and Mandela Joseph. You were finally taking the magician to see a child psychologist – a plan you meant to enact almost two years ago, but were persuaded against. To make a long story short, you were wrong to wait and worry that there wasn’t enough money. Now everyday is Mandela Day, because the kid hasn’t escaped from the home since he got back from his time abroad.
And when you finally returned to Sudan you had to attend to new visitors from America and dive back into all the random and not so random tasks of running a children’s home. You had all these excuses and you kept yourself from visiting the hospital until today.
You are still touching his face when his smile starts to fade along with the friendly sparks in his eyes. He seems to lose all awareness of you, his pupils like analog TV screens shutting down. The sorghum posho remains forgotten in his hand and it hangs halfway off his fingertips until Moses takes it away.
You tell your daughters and the nearby TB patients that you’re going to pray now. They fall silent and you talk to God, asking him to stop by the ward this afternoon and fill up the kid’s devastated body with light. Then you say amen and stand up straight and gently say to the girls, “It’s time to go.”











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